Over recent weeks, I have experienced both sides of the spectrum - the highs and the lows. Let's get the downside out of the way first.
It’s times like these when you wonder whether life is worth it all.
First came the pressure spots under my legs which have been there for several years now – no doubt a by-product of being seated in a wheelchair for over sixty years. This condition has fluctuated in intensity over recent times until, right now, small ulcers have developed which makes being seated on them rather painful. Additional padding and a brand new cushion on a brand new wheelchair have done little to ease this. But, as always, keeping my mind occupied on other things has made it bearable.
Remember, I live alone with just 2 – 3 visits per day from my team of support workers and am seated ALL day in my powered wheelchair, which acts as my only means of mobility.
Next came the flu – first time in three years. I had bragged to my carers that my thrice-weekly dialysis treatments (which began three years ago), whilst being very time-consuming, had developed my immune system to the point where I didn’t pick up any of the usual bugs or nasties that came floating around me, particularly at the onset of winter.
Now, however, sniffles became snuffles, followed by a dripping nose and hacking cough – not nice! At this point, my dialysis doctor prescribed an antibiotic called cephalexin – one I had taken before with some side effects which I couldn’t recall. Then I developed an extremely irritated and itchy skin (ah, NOW I remembered!) which kept me awake and scratching most of each night.
One has cause to wonder where our medicos get their training as, a few days later, I looked up the medical dictionary on my computer where it clearly states (quote): ‘Cephalexin will not treat a viral infection such as the common cold or flu’.
My dialysis nurses told me to stop taking the cephalexin, hence my dialysis INTERN doctor switched me on to another antibiotic called nufloxib.
Then came the diarrohea. Definitely the backside of life!
A few weeks back, I took delivery of my first new powered wheelchair in more than eight years. Valued at $12,000 when new, this was a demo model from a company in Geelong. Fortunately for me, the government provides funding for special equipment such as wheelchairs, so I was more than happy to accept it. This new model has four speeds, tilt-back mechanism and enables me to raise the seat to a new high where I can actually look down on most people who are seated!
I will try to get a photograph of the new 'rolls' for my next blog... stay tuned.
Tuesday, June 12, 2012
Saturday, May 26, 2012
MAY'S MISERY
I'm getting in a bit earlier this time because, although May has not quite ended, my social activity has ceased, so I can report the results now.
Are you ready for this? With lumps in my ticker and tears in my eyes I must report a couple of crappy occasions:
Wednesday 23. My book launch in Geelong was a non-event. Roberta and I travelled the long journey by car and, after a brief look around the CBD window shopping and having lunch, we set up at the local library for a busy afternoon of talking to dozens of old and new friends, signing books and, hopefully, at least covering the costs of petrol expenses and accommodation. The library had done a magnificent job of advertising our visit with a large poster at the entrance, but both of the local newspapers had ignored the media releases and photographs I had sent them several days earlier and they printed nary a word.
Two hours and NO (not even one) people later, we decided to 'pull the plug' and head back home to Bendigo. Over those two hours, however, we had chatted with two members of the library staff who were most helpful with tips and suggestions of how to go about promoting my book, so we returned home feeling all was not lost.
Two weeks earlier I had sent an autographed copy of my book to Sam Newman at the AFL Footy Show on Channel 9, referring to the fact that I knew Bill Brownless (a regular on the show and former player of the Geelong Football Club) and had made reference in the book of how I used to 'play football' in my bed when I was a child.
I asked Sam if he would be so kind as to mention on the show that I was coming to Geelong for a book launch, but I received neither acknowledgement of the book nor a mention on the show. That didn't particularly surprise me though because I realise the show must be inundated with these sorts of requests, but I thought an acknowledgement would have been nice.
Saturday 26. An asthmatic, Roberta attended the Bendigo RSL Club with me, where we had dinner and that was all for her. The proposed respite care she had engaged for her three young children at home advised her she could only stay from 6 to 8 p.m. which meant poor Roberta had to return home virtually straight away to contend both with her children and her asthma, instead of having a night out being entertained by The Impalas on their "Last Night Stand".
I stayed there at the club until 10.30 and tried to enjoy myself, but it just wasn't the same without my date. My brother Geoff (who was in the band on their last engagement after 48 years in show business) and their families were there, together with my daughter Leanne, and I chatted with them of course, but my heart was elsewhere.
So much for my May Mayhem! This all discourages me somewhat for future social activity, but I'll bounce back for another go no doubt when/if an opportunity presents itself. Meanwhile I'll try to stay warm and keep thinking about a trip to New Zealand - maybe in the Summer!
Are you ready for this? With lumps in my ticker and tears in my eyes I must report a couple of crappy occasions:
Wednesday 23. My book launch in Geelong was a non-event. Roberta and I travelled the long journey by car and, after a brief look around the CBD window shopping and having lunch, we set up at the local library for a busy afternoon of talking to dozens of old and new friends, signing books and, hopefully, at least covering the costs of petrol expenses and accommodation. The library had done a magnificent job of advertising our visit with a large poster at the entrance, but both of the local newspapers had ignored the media releases and photographs I had sent them several days earlier and they printed nary a word.
Two hours and NO (not even one) people later, we decided to 'pull the plug' and head back home to Bendigo. Over those two hours, however, we had chatted with two members of the library staff who were most helpful with tips and suggestions of how to go about promoting my book, so we returned home feeling all was not lost.
Two weeks earlier I had sent an autographed copy of my book to Sam Newman at the AFL Footy Show on Channel 9, referring to the fact that I knew Bill Brownless (a regular on the show and former player of the Geelong Football Club) and had made reference in the book of how I used to 'play football' in my bed when I was a child.
I asked Sam if he would be so kind as to mention on the show that I was coming to Geelong for a book launch, but I received neither acknowledgement of the book nor a mention on the show. That didn't particularly surprise me though because I realise the show must be inundated with these sorts of requests, but I thought an acknowledgement would have been nice.
Saturday 26. An asthmatic, Roberta attended the Bendigo RSL Club with me, where we had dinner and that was all for her. The proposed respite care she had engaged for her three young children at home advised her she could only stay from 6 to 8 p.m. which meant poor Roberta had to return home virtually straight away to contend both with her children and her asthma, instead of having a night out being entertained by The Impalas on their "Last Night Stand".
I stayed there at the club until 10.30 and tried to enjoy myself, but it just wasn't the same without my date. My brother Geoff (who was in the band on their last engagement after 48 years in show business) and their families were there, together with my daughter Leanne, and I chatted with them of course, but my heart was elsewhere.
So much for my May Mayhem! This all discourages me somewhat for future social activity, but I'll bounce back for another go no doubt when/if an opportunity presents itself. Meanwhile I'll try to stay warm and keep thinking about a trip to New Zealand - maybe in the Summer!
WHY DO I BLOG?
I look at 'blogging' as being a gathering of people I care about who care about me. Of course , I could be wrong - they may not care about me at all, but that's of no real significance to me, because I still care about them.
Anyway, here we all are... called together by me, just so I can open my heart and waffle on about things that are important to me, including things that have annoyed me, upset me, confused me, touched me, made me happy, made me sad, made me whinge or complain, laugh, cry, or just plain made me want to reach out to someone who is prepared to listen. I can't do this on a one-on-one basis, because it may be too confronting for either or both of us, but I still need to open up and get it out of my system, so I figure this is the best way to do it... maybe I'm wrong, but it's my way (good name for a song?).
How you react is entirely up to you. You can ignore it or act as you wish - laugh with me, cry with me or simply delete it... it's entirely up to you. It's serving it's purpose by just being released from my mind. The fact that I invited you to be amongst its recipients is because I trust you - this is just between you and me, yet it can be shared between us all. Again, that's up to you. Am I crazy? Probably, but - as I said a few lines back - it's my way.
Respond if you wish to comment or offer advice by sending me a personal message to my regular email address... and please feel free to speak your mind. Nothing you say will upset me in any way. The mere fact that you are interested enough in reading my blog makes it all worthwhile.
Now, having said all that, there will be a new blog a'waiting in your box within the next hour or so (it's 2.15 p.m. on Sunday, May 27 right now) at the usual address – it’s at http://thewheelies.blogspot.com/
Until next time, cheers from Colin
Anyway, here we all are... called together by me, just so I can open my heart and waffle on about things that are important to me, including things that have annoyed me, upset me, confused me, touched me, made me happy, made me sad, made me whinge or complain, laugh, cry, or just plain made me want to reach out to someone who is prepared to listen. I can't do this on a one-on-one basis, because it may be too confronting for either or both of us, but I still need to open up and get it out of my system, so I figure this is the best way to do it... maybe I'm wrong, but it's my way (good name for a song?).
How you react is entirely up to you. You can ignore it or act as you wish - laugh with me, cry with me or simply delete it... it's entirely up to you. It's serving it's purpose by just being released from my mind. The fact that I invited you to be amongst its recipients is because I trust you - this is just between you and me, yet it can be shared between us all. Again, that's up to you. Am I crazy? Probably, but - as I said a few lines back - it's my way.
Respond if you wish to comment or offer advice by sending me a personal message to my regular email address... and please feel free to speak your mind. Nothing you say will upset me in any way. The mere fact that you are interested enough in reading my blog makes it all worthwhile.
Now, having said all that, there will be a new blog a'waiting in your box within the next hour or so (it's 2.15 p.m. on Sunday, May 27 right now) at the usual address – it’s at http://thewheelies.blogspot.com/
Until next time, cheers from Colin
Tuesday, May 8, 2012
MAY MAYHEM!
April certainly passed by very quickly with all my activity, even though things didn't work out exactly as planned. For example, my attendance at Good News Week at the Melbourne Town Hall on April 14 looked like falling in a heap early that morning when my proposed 'date', Roberta, pulled out through illness. Luckily, however, I remembered a friend in Melbourne by name of Barbara. I phoned her at work (she is a nurse) and everything fell back into place. She agreed to meet at the Town Hall and see the show with me, thus making good use of the extra ticket I had purchased.
We agreed later that the show was very disorganised and the constant use of four-letter words was most unnecessary. Not to worry, we saw the show and I caught the train home with 20 seconds to spare!
April 21. Then came the Golden Wedding Anniversary of my old mate Harry Wilkinson and his charming wife Glenda, held at the Old Flour Mill Gallery in Euroa; a very interesting and picturesque place and a wonderful afternoon of conviviality with friends of old was had by all. Again Roberta was unable to make it with me, so Tracey, another of my support workers, agreed to drive the accessible van I had hired to get us there... she also enjoyed the meal and cordiality.
April 29. Next was my birthday barbecue. The weather was kind and 16 of the 60 I had invited accepted and came along to an afternoon of good tucker, good music (provided by my dear and extremely talented brother Geoff on guitar) and superb fellowship. Geoff, incidentally, has just launched his own first book, titled "Ways to Identify Purpose and Meaning" from the Curriculum for Whole Living Series. Contact me if you wish to know more about it.
Now for May. On the 2nd, I took Roberta and her family out for dinner at the Bendigo Club who had sent me a meal voucher for my birthday. Having three young children to take care of and being a sole parent, she doesn't get out to socialise very often.
May 23. We head to Geelong for the launch of my book, "If I Can Do It..." at the local Library. After having lived in Geelong for 26 years I hope to see a few familiar and friendly faces there at the occasion.
May 26. After many many years (at least 40) on the dance band scene, "The Impalas" will hold their farewell night at the Bendigo RSL Club. My brother Geoff, who has been their lead guitarist/vocalist for most of that time, will be featured so, of course, I will be in attendance to witness his final performance with the group.
My New Zealand plans remain unresolved with no travel partner offering to accompany me, while my facial neuralgia has diminished, thanks to the doctor's prescribed medication.
We agreed later that the show was very disorganised and the constant use of four-letter words was most unnecessary. Not to worry, we saw the show and I caught the train home with 20 seconds to spare!
April 21. Then came the Golden Wedding Anniversary of my old mate Harry Wilkinson and his charming wife Glenda, held at the Old Flour Mill Gallery in Euroa; a very interesting and picturesque place and a wonderful afternoon of conviviality with friends of old was had by all. Again Roberta was unable to make it with me, so Tracey, another of my support workers, agreed to drive the accessible van I had hired to get us there... she also enjoyed the meal and cordiality.
April 29. Next was my birthday barbecue. The weather was kind and 16 of the 60 I had invited accepted and came along to an afternoon of good tucker, good music (provided by my dear and extremely talented brother Geoff on guitar) and superb fellowship. Geoff, incidentally, has just launched his own first book, titled "Ways to Identify Purpose and Meaning" from the Curriculum for Whole Living Series. Contact me if you wish to know more about it.
Now for May. On the 2nd, I took Roberta and her family out for dinner at the Bendigo Club who had sent me a meal voucher for my birthday. Having three young children to take care of and being a sole parent, she doesn't get out to socialise very often.
May 23. We head to Geelong for the launch of my book, "If I Can Do It..." at the local Library. After having lived in Geelong for 26 years I hope to see a few familiar and friendly faces there at the occasion.
May 26. After many many years (at least 40) on the dance band scene, "The Impalas" will hold their farewell night at the Bendigo RSL Club. My brother Geoff, who has been their lead guitarist/vocalist for most of that time, will be featured so, of course, I will be in attendance to witness his final performance with the group.
My New Zealand plans remain unresolved with no travel partner offering to accompany me, while my facial neuralgia has diminished, thanks to the doctor's prescribed medication.
Friday, April 6, 2012
APRIL ACTIVITY!
I have decided again that it's time to dust off the cobwebs and become more sociable after giving up on ever finding "Ms Right For Me" (not their fault - I'm too hard to please, but I have been spoiled in the past). Anyway, I'm booked in to attend the TV recording of "Good News Week" at Melbourne Town Hall on April 14th (staying overnight in the big smoke), then - one week later - I travel to Euroa to join in the Golden Wedding celebrations of my old mate Harry Wilkinson and his wife Glenda. On both of these occasions I will be partnered by my support worker and friend, Roberta Exell.
At April's end (29th) I will celebrate another milestone with a barbecue at the home of my daughter and son-in-law, Leanne and Craig with a trip to Geelong one week later to give an author talk and book signing at the Geelong Library... that's four week-ends in a row of social activity!
This all means a shuffling of my dialysis treatments, but the staff at the Bendigo dialysis unit have been very helpful in this area and have encouraged me all the way to be as active as I possibly can. I am even considering a trip interstate or overseas (New Zealand?) later in the year if dialysis treatments can be slotted into my itinerary three times a week... and I can find a travel partner - any takers?
In anticipation of all this merry-making, I plan to spend a very quiet Easter at home with my computer and support workers to keep me company. My daughter and grandsons presented me with a box of Cadbury chocolates today, so they will also feature on my list of priorities!
One little health hiccup recently is a constant stabbing of a nerve in the left cheek (of my face) which affects every time I eat, particularly when chewing. Originally diagnosed and treated with anti-biotics for sinusitis, I am seeking a second opinion from my G.P. next week. Being unable to enjoy my meals is certainly not my idea of having fun.
You can expect to hear from me again early in May with a report on all the above events... including whether a travel partner has appeared on the scene!
At April's end (29th) I will celebrate another milestone with a barbecue at the home of my daughter and son-in-law, Leanne and Craig with a trip to Geelong one week later to give an author talk and book signing at the Geelong Library... that's four week-ends in a row of social activity!
This all means a shuffling of my dialysis treatments, but the staff at the Bendigo dialysis unit have been very helpful in this area and have encouraged me all the way to be as active as I possibly can. I am even considering a trip interstate or overseas (New Zealand?) later in the year if dialysis treatments can be slotted into my itinerary three times a week... and I can find a travel partner - any takers?
In anticipation of all this merry-making, I plan to spend a very quiet Easter at home with my computer and support workers to keep me company. My daughter and grandsons presented me with a box of Cadbury chocolates today, so they will also feature on my list of priorities!
One little health hiccup recently is a constant stabbing of a nerve in the left cheek (of my face) which affects every time I eat, particularly when chewing. Originally diagnosed and treated with anti-biotics for sinusitis, I am seeking a second opinion from my G.P. next week. Being unable to enjoy my meals is certainly not my idea of having fun.
You can expect to hear from me again early in May with a report on all the above events... including whether a travel partner has appeared on the scene!
Friday, March 2, 2012
BOOKS FOR SALE!
In the photo below (click on it to increase size) I am seated at my book-launch at Dymocks Bookstore in Bendigo where, shortly afterwards, I sold and signed ten copies of my autobiography. My brother Geoff was on hand to introduce me to the masses - about 20 - who were gathered there, together with his good wife Meryl, who is seen in the background checking out the various other books on display.
I spoke briefly about the publicity from two local newspapers as well as WIN TV who ran a short feature about the book-launch. I also made comment about one newspaper whose reporter took one of my comments and made it the theme for their whole article... this was my tongue-in-cheek, off-the-cuff, remark that I had been married three times and (ha ha) "am looking for wife No. 4"! I assured those in attendance that this was NOT to be taken as an indication that my book was intended as a sequel for the Kama Sutra"... if this is what they thought they would have been extremely disappointed!
Since then I have sold just on 100 copies - not exactly a "best seller", but enough to encourage me to circulate the news a little further afield to other states and, possibly, to other countries. The only things I need now are time and a secretary (my one-finger typing skills are not conducive to long stints on a keyboard!
My only recent social activity has been to attend the combined 18th birthday barbecue of my twin grandsons Jack and Ryan Murphy at the lovely home of their parents in Maiden Gully and my attendance, with friend and support worker Roberta, at the Celtic Thunder Concert at the Bendigo Stadium - a great show in the estimation of the large crowd in attendance.
I spoke briefly about the publicity from two local newspapers as well as WIN TV who ran a short feature about the book-launch. I also made comment about one newspaper whose reporter took one of my comments and made it the theme for their whole article... this was my tongue-in-cheek, off-the-cuff, remark that I had been married three times and (ha ha) "am looking for wife No. 4"! I assured those in attendance that this was NOT to be taken as an indication that my book was intended as a sequel for the Kama Sutra"... if this is what they thought they would have been extremely disappointed!
Since then I have sold just on 100 copies - not exactly a "best seller", but enough to encourage me to circulate the news a little further afield to other states and, possibly, to other countries. The only things I need now are time and a secretary (my one-finger typing skills are not conducive to long stints on a keyboard!
My only recent social activity has been to attend the combined 18th birthday barbecue of my twin grandsons Jack and Ryan Murphy at the lovely home of their parents in Maiden Gully and my attendance, with friend and support worker Roberta, at the Celtic Thunder Concert at the Bendigo Stadium - a great show in the estimation of the large crowd in attendance.
Tuesday, January 24, 2012
RELEASED AT LAST!
At long last my autobiography, 30 years in the writing, has been released to the public! On the morning of 21st January, Dymocks Books in Bendigo held the launch of my autobiography. My brother Geoffrey and his wife Meryl were on hand and Geoff did my official introduction to the wandering masses (well... 20 or so)! We sold ten books, so that wasn't a bad start and I certainly didn't suffer from writer's cramp signing that number. The media has assisted with articles in the Bendigo Weekly and Advertiser, while WIN Television did an interview last week which went to air on Friday, January 27.
We are attempting to get the book ePublished online, but won't know about that for a few days - I will advise you further in my next Blog.If you would like a personally signed copy - for yourself or a friend - just contact me on my email address and I'll send you details.
My only other social outing was "Harrymas"... our Dad's birthday... when my immediate family gathered at the home of my daughter and her husband for an afternoon of eating, watching old home movies and having a singalong.
The most recent event that concerns me is my problem neighbours… a gentleman in a wheelchair (who is an alcoholic) and his family. His son was caught (on camera) pinching the wallet of a taxi driver who brought me home from dialysis last week (while he was seeing me to the front door), so now I make sure all the doors and windows are locked at night. It’s things like that that make me a tad nervous about living alone virtually 24/7… not to mention waking up during the early hours to the sounds of the house! Creaks and bumps in the night are rather disconcerting now whereas they never used to bother me.
Ah, the joys of being a loner!
Oh, I have also become the proud (?) owner of a new wheelchair! I am still 'breaking it in', but will tell you more about it in my next blog... stay tuned!
We are attempting to get the book ePublished online, but won't know about that for a few days - I will advise you further in my next Blog.If you would like a personally signed copy - for yourself or a friend - just contact me on my email address and I'll send you details.
My only other social outing was "Harrymas"... our Dad's birthday... when my immediate family gathered at the home of my daughter and her husband for an afternoon of eating, watching old home movies and having a singalong.
The most recent event that concerns me is my problem neighbours… a gentleman in a wheelchair (who is an alcoholic) and his family. His son was caught (on camera) pinching the wallet of a taxi driver who brought me home from dialysis last week (while he was seeing me to the front door), so now I make sure all the doors and windows are locked at night. It’s things like that that make me a tad nervous about living alone virtually 24/7… not to mention waking up during the early hours to the sounds of the house! Creaks and bumps in the night are rather disconcerting now whereas they never used to bother me.
Ah, the joys of being a loner!
Oh, I have also become the proud (?) owner of a new wheelchair! I am still 'breaking it in', but will tell you more about it in my next blog... stay tuned!
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